CANCER UPDATE: Time to Regroup

The immediate heart failure crisis is over. Time to pause; evaluate and redirect. My local doctor thinks cancer treatment is over. Heart Failure is kind of a non-negotiable for her. Her suggestion is HOSPIC care. The cancer is not going away—it appears to be spreading. I appear to be losing the battle. HOSPIC will ensure I am comfortable. HOSPIC is not an immediate shutdown and goodbye. There are people who have been in HOSPIC for years. Some enter; withdraw for a specific treatment; enter again. I know the immediate benefit for me is free diapers. Adult diapers are not cheap but are very necessary when you have urinary issues. I will have someone medically checking on me—someone a little dispassionate. DH says I tend to over state how well I am doing leading the doctor to think Im great when Im barely alive. There will also be some personal grooming assistance and a little light housekeeping. Both extremely needed. I simply cant do things I did 2 years ago or even 6 months ago. Anything I need for my comfort will be provided including specialized equipment and the O2 Ive so recently found necessary.

And then there is the other point of view….. My Oncologist doesnt seem to think I am dead. He admits the metastasis to the heart is rare but doesnt think that was the cause of the heart failing. He is looking at the CHF similarly to had I broken a leg i.e. while I am being treated for one medical condition, cancer, a second medical condition arose which needed care. We hit the pause button on cancer treatment, fixed the 2nd condition (CHF) and now we are ready to resume cancer treatment. I tend to think the cancer treatment was always effecting the heart because always after 2 months treatment, Id become very weak, very fatigued. Always. The only way to know for sure? Now that the heart is stable; all the tests normal or near normal: start the chemo. We ve agreed to 2 weeks chemo then a CT scan and more blood work……

15 thoughts on “CANCER UPDATE: Time to Regroup

  1. Loving you from afar. I’m not really a stranger— just a friend you haven’t had coffee with before. And… many prayers.

  2. I have been enjoying your blog for a few years. Best wishes for your health and your hospice experience.

  3. I’m always interested in your trials and tribulations of the sewing and life kind. I hope you get the support you need and deserve. I’m sending you best wishes for your health from Down Under!

  4. So sorry about all these complications. Your husband is probably right that it’ll be good to have a more objective medical eye keeping track of you. And it’s true that no matter how bad we are the odd broken leg is possible, and doesn’t necessarily mean the initial problem has evolved. Chemo normally makes you exhausted without necessarily damaging your heart, so try not to worry about that too much.. I should say try not to worry too much in general, hopefully the hospice setup will allow you to relax a bit because you have good backup on several levels, and your husband too for the same reason

  5. Bev, I sure hate to hear the news of the complications you are experiencing. Hospice can be a godsend, and, as you say, many folks are on hospice for a very long time. I hope you feel well enough to do the things you want to do and that make you happy. Sending hugs and good thoughts your way!

  6. It is good that assistance is available to you. Embrace your abilities, limitations, and frustrations. After all, they are all a part of what makes you the wonderful person you are. Be honest with medical personnel–they really need to know.. I’ve learned from personal experience that it’s ok to ask for help–and seize each day with gratitude and faith.

  7. I am glad you blogged and that I got to know you & learn from you. Your strength is amazing and thank you for sharing your life, good, bad & all with us. You & your family are in my prayers & I always look forward to your post.

  8. Your relentless pursuit of perfect fit when you sew speaks of your determination and persistence. You can bring these qualities to your cancer treatment, if that speaks to you. That being said, my sister was on hospice care for over a year and they were wonderful.

  9. Thank you for sharing all of your experience fitting pants and fighting cancer. Glad hospice will help with some of your daily tasks so you can put your energy on other things.

  10. I’m very sorry to hear this news. I hope you get the supports you need to feel as good as possibly can be. I agree with your husband to be as frank as you can with your treating doctors so they can help you as best as they can. Warm regards Janine

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